ࡱ> Q gbjbj,, 4NeNeG8   8A| UI %!"G!G!G!"=#<y# U U U U U U U$@Y[J-UE#""##-UG!G!HrU;%;%;%#FG!G!U;%#U;%;%KDqOG!1My#F-M&TU0USM@\%$@\LqOqO&@\O\##;%#####-U-U$|###U####@\######### :  Institutional Review BOard PARENTAL CONSENT FORM PARENTAL CONSENT PROCEDURESUse of this template is optional. However, by federal regulations ( HYPERLINK "https://www.hhs.gov/ohrp/regulations-and-policy/guidance/faq/informed-consent/index.html" \l ":~:text=The%20HHS%20regulations%20require%20that,been%20waived%20by%20an%20IRB." 45CFR46.116), all consent documentation must address each of the required elements listed below (purpose, procedures, duration, benefits, risks, alternative procedures, confidentiality, whom to contact in case of injury, and a statement that participation is voluntary). This document must be completed by the Principal Investigator and signed by the parent or legal guardian of each potential research participant. Signed copies of the consent form should be provided. INSTRUCTIONS: Delete this section before finalizing your consent form to submit with your IRB protocol application. The language should be modified as appropriate for your study. Provide relevant information in the sections below, replacing italicized directions/guidance (anything in this font color) with information specific to your study. Delete sections that do not apply to your research. This form was adapted with permission from Cornell Universitys Research & Innovation Office ( HYPERLINK "https://researchservices.cornell.edu/forms/irb-consent-form-templates" https://researchservices.cornell.edu/forms/irb-consent-form-templates). Last Updated 08/08/2025  Todays date: FORMTEXT       FORMTEXT      Project InformationProject Title:  FORMTEXT      Protocol Number:  FORMTEXT      Principal Investigator:  FORMTEXT      Phone:  FORMTEXT      Email:  FORMTEXT      College: Choose an item. FORMTEXT      School and Program:  FORMTEXT       I am/we are asking your child to participate in a research study titled  Project Title . I/We will describe this study to you and answer any questions you may have. This study is being led by Name of PI, from the Department at 91Ƶ. (If the PI is a student) The Faculty Advisor for this study is Name, from the Department at 91Ƶ. This study has been approved by USMs Institutional Review Board (IRB protocol #). Purpose: The purpose of this research is to. Provide a clear, concise explanation in lay language of the purposes of the research, including why it is being performed and what use may be made of the results. Description of Study: If you agree to allow your child to participate, I/We will ask them to Explain in simple, non-scientific language what will happen to their child or what they will be asked to do in the study. Describe the expected time commitment for each component, as well as the total time for participation. All procedures listed in the IRB application should be described, and any experimental procedures (interventions, manipulations, treatments) specifically noted. If any study procedures involve the use of artificial intelligence (AI) (e.g., interacting with participants, accessing identifiable data, data analysis), explain in lay terms how the AI tool will be used in the study. Benefits: Describe any probable benefits of participation. Be sure to distinguish between a likely direct benefit (e.g., from therapeutic or intervention research) and a possible indirect benefit (e.g., reflecting on an experience may lead to a better understanding of oneself). If there are no direct benefits, indicate that there are none. Describe the expected benefits to society or scientific knowledge: e.g., information from this study may benefit other people now or in the future or we hope to learn more about _______ Note: Compensation, financial incentives, learning about how experiments are conducted, receiving a gift, or earning extra credit for being a research participant are not benefits and should not be listed here. Incentives for Participation: Indicate whether their child will receive incentives, compensation, or extra credit for being in the study. If students receive course credit for participation, ways of earning equivalent credit without participating in the research must also be described here. If participants are unwilling or unable to complete their participation, describe how their incentives will be distributed. If completing all research materials (e.g., answering all survey or interview questions; passing attention checks; meeting a minimal requirement of entries in a weekly/monthly log) is required, you must make this condition clear to them here. State that they can choose not to participate if they are uncomfortable with these conditions. If there are no incentives, indicate that there are none. Risks and Discomforts: In simple, non-scientific language, describe any reasonably foreseeable risks or discomforts, with consideration given to: Legal risks (e.g., discovering activities that may require reporting to authorities, the possibility of being arrested) Physical risks (e.g., nausea, muscle aches, rashes, infection, discomfort) Social risks (e.g., loss of confidentiality, embarrassment, stigma) Economic risks (e.g., effect on financial standing, employability, or insurability) Psychological risks (e.g., feelings of sadness, stress, or anxiety) Occupational (e.g., loss of wages) AI tools (e.g., the potential for the system to reinforce existing societal biases, which may lead to unfair treatment or representation; an unknown or unforeseeable risk of reidentifying private or sensitive information, even after the removal of identifiers) Describe the methods that will be taken to minimize any risks, inconveniences, or discomforts. If your study may involve psychological risk, you must include relevant mental health resources in your informed consent document. If there is potential for bias when working with AI tools, describe the strategies that will be used to monitor for bias and ensure equitable outcomes, such as including a mechanism for human oversight and intervention to address unexpected harm during research procedures. If the potential for medical injury exists, identify treatment procedures or the absence thereof. Include the following statement, if applicable: 91Ƶ has no mechanism to provide compensation for participants who may incur injuries as a result of participation in research projects. However, efforts will be made to make the facilities and professional skills at the University available. Participants may incur charges as a result of treatment related to research injuries. Information regarding treatment or the absence of treatment has been given above. If there are no known risks, state: I/We do not anticipate any risks from participating in this research. Privacy/Confidentiality/Data Security: Explain briefly, and in lay terms, how you will protect their childs privacy and/or confidentiality. Consider the following: If you will completely de-identify data, or keep identifying information separate from research data (e.g., signed consent forms kept separate from the survey data and the two will not be connected) Access to identifying information by others If you plan to keep identifying information with the data If you are not planning to collect any identifying information at all (as in anonymous surveys) Physical security of data/research files How sensitive data will be kept secure in an electronic environment If audio and/or video recording devices are used, explain why these are needed and what will be done with them upon completion of the research (e.g., kept indefinitely, archived after transcription, destroyed after X years) Plans for data retention and disposal, with consideration given to the 3-year minimum retention period required by federal regulations Additional considerations when working with AI: The risk of re-identification using current and anticipated AI capabilities and implementing safeguards (e.g., encryption, access controls) When using cloud-based AI services, confirm that data storage and processing comply with institutional and federal data protection standards If you are doing interviews, provide a separate signature line for the parent/legal guardian to agree to allow their child to be audio/video recorded. Likewise, if you will take photographs or make audio, video, or other recordings that you want to use for activities beyond research analysis (publications, presentations, other promotional purposes), include a section that: Informs the parent/legal guardian that you are making a [type(s) of media used] recording in which their childs name, likeness, image, and/or voice will be included; Asks the parent/legal guardian to grant you the right to make, use, and publish recordings in whole or in part in media forms now known (such as film, slides, and digital audio) or developed in the future. This includes the right to edit or duplicate any images/recordings; Explains the limitations on reproduction, distribution, performance, or display of images/recordings; Explains that the parent/legal guardian or child does not have rights to inspect or approve the finished product or printed/published matter that uses the images/recordings or versions of the images/recordings; and Explains that the parent/legal guardian or child will not receive any financial compensation for commercial and/or non-commercial (as appropriate) uses of the images/recordings. Please sign below if you are willing to have this interview (specify audio or video) recorded. Your child may/may not participate in this study if you are not willing to have the interview recorded. I do not want to have this interview with my child recorded. I am willing to have this interview with my child recorded. Signed: Date: If you will use an AI transcription service, describe what the AI will do with the data, what limitations, if any, will be placed on it, whether data can be removed from the platform, and how data will be shared and analyzed, as applicable. Also, address the potential unknown or unforeseen risk for AI to reconnect de-identified data back to the participant. Included the following statement, as applicable: If you agree, I/we will use an AI service to transcribe the recorded data your child provides. The AI service I/we will use is ________, which has a data governance statement that can be found here ________. Provide information on your procedures for reviewing transcripts and consider using the following statements, as appropriate: Since AI transcription may add text, misattribute text to a speaker, and/or incorrectly transcribe phrases or sentences, I/We will also review and verify AI-generated transcripts. If you are uncomfortable with us using an AI service to create a transcript, please let us know before your child participates by making the appropriate selection below. I am willing to allow an AI service to generate a transcript of my childs information. I am not willing to allow an AI service to generate a transcript of my childs information; I will allow the use of ______________ to generate a transcript of my childs information. Signed: Date: This next section is required for all federally funded research, and recommended for all other studies: We will do our best to keep your childs participation in this research study confidential to the extent permitted by law; however, it is possible that other people may need to review the research records and may find out about your childs participation in this study. For example, the following people/groups may check and copy records about this research: The Office for Human Research Protections in the U. S. Department of Health and Human Services (For sponsored studies, add:) The research study sponsor, Name of Sponsor 91Ƶs Institutional Review Board (a committee that reviews and approves research studies) and the Office for Research Integrity When the research involves e-mail communication, include the following statement: Please note that email communication is neither private nor secure. Though I am/we are taking precautions to protect your privacy, you should be aware that information sent through e-mail could be read by a third party. Do not submit personally identifiable or sensitive information into third-party or public AI tools for which privacy and security policies are not well-understood. Specify if an AI program will store the data for future use, including for training or improving AI systems. For sensitive research data with identifiers, stored in the cloud or on servers, or transmitted via the internet, consider including the following statement: Data may exist on backups and server logs beyond the timeframe of this research project. Data will be stored on ________________. OR Your childs confidentiality will be kept to the degree permitted by the technology being used. We cannot guarantee against the interception of data sent via the internet by third parties. If you may share data without identifiers, we strongly recommend that you include this section in your consent to inform participants that you may share de-identified data you collect from them. Certain sponsors now require researchers to make available their de-identified data to the research community, as do a growing number of journals. If you choose not to include the following language and later wish to share de-identified data, you may not be able to do so without re-contacting participants to obtain consent. De-identified data from this study may be shared with the research community at large to advance science and health. We will remove or code any personal information that could identify your child before files are shared with other researchers to ensure that, by current scientific standards and known methods, no one will be able to identify your child from the information we share. Despite these measures, we cannot guarantee the anonymity of your childs personal data. Include this section if you will or might approach participants for a follow-up study: We may contact you again to request your childs participation in a follow-up study. As always, your childs participation will be voluntary, and we will ask for your explicit consent for them to participate in any follow-up studies. Explicit consent may not be necessary. Here is suggested language if you choose to ask for specific consent: May we contact you again to request your childs participation in a follow-up study? Yes/No In addition to the recommended data-sharing language above, if you are collecting identifiable data or identifiable biospecimens, you must include one of the following: Identifiers might be removed, and the de-identified information or biospecimens used for future research without additional consent. OR Identifiable information might be used for future research with your consent. OR Your childs information or biospecimens will not be used or distributed for future research studies. If you are collecting biospecimens, you must include the following: Specimens collected from your child for this study and/or information derived from their specimens will/may/will not be used to generate commercial profit. You will/will not share in any commercial value or other compensation from products developed using these specimens. If clinically-relevant research results may be generated, you must include this statement: You will/will not receive any clinically relevant results discovered about your child and/or the general participant population. If your study may involve whole genome sequencing, include this statement: This research may/will include whole genome sequencing. Alternative Procedures: Describe alternatives to participation that will be presented to participants in the study (generally another accepted course of therapy or diagnostic procedure, etc.). If there are no alternative procedures, indicate that there are none. Taking part is voluntary: Explain that their child's involvement is voluntary, their child may refuse to participate before the study begins, discontinue at any time, or skip any questions/procedures that may make them feel uncomfortable, with no penalty to them, or their academic standing, record, or relationship with the university or other organization or service that may be involved with the research. Participants Assurance: Explain how they can contact you with questions or concerns. A standard statement follows: The main researcher conducting this study is [principal investigators name], a [professor, graduate/undergraduate student, etc.] at 91Ƶ. Please ask any questions you have now. If you have questions later, you may contact [principal investigators name] at [USM email address] or at [phone number]. This project and this consent form have been approved by 91Ƶs Institutional Review Board, which ensures that research projects involving human subjects follow federal regulations. If you have any questions or concerns regarding your rights as a subject in this study, you may contact the Institutional Review Board (IRB) at HYPERLINK "mailto:IRB@usm.edu"IRB@usm.edu or 601-266-5997 or: Chair of the Institutional Review Board 91Ƶ 118 College Dr. 5116 Hattiesburg, MS 39406 If parents/legal guardians will be given a copy of this form or some other information sheet, indicate that here. Statement of Consent I have read the above information and have received answers to any questions I asked. 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